About Neave

Neave on the day she was born

Neave on the day she was born

Neave Erica Hope Evans was born by emergency caesarean section at 06.11am on Sunday the 2nd of October 2011.

She was resuscitated and it was 18 minutes before she took her first breath. The prognosis was not good and her parents were told to be prepared that she may not survive and if she did she would be brain damaged.

Neave was transferred from intensive care (neonatal) in Preston to Salford Royal Hospital where she underwent “cooling” treatment for several days in an attempt to stop further brain damage. Neave could not breathe for herself at first and was on a ventilator for the first four or five days of her life.

 

Neave waking up for the first time

Neave waking up for the first time in Salford

She was in Salford for five days before being sent back to Preston Neonatal.

Neave had an MRI scan which confirmed the damage to the brain.

Two weeks after Neave was born she was able to go home for the first time.

Neave has been diagnosed with four limb cerebral palsy.

Cerebral Palsy Classifications

Neave has mixed type Quadreplegia Cerebral Palsy

She has poor muscle tone in her trunk and cannot sit, walk or crawl. Neave cannot talk as yet though is very chatty in her own way.

Neave regularly arches due to the poor tone, which means her whole body stiffens and she can be difficult to hold and often gets distressed when this happens.

Even with her challenges, Neave is a very happy baby and is very nosey. She has quite good head control and is very interested in everything that goes on about her. She loves cuddles and being sang to and any toys with lights or noises are her favourites.

Neave receives regular NHS treatments such as physiotherapy, occupational therapy and speech & language and attends White Ash special school in Oswaldtwistle three days a week which she very much enjoys.

Neave supporting Paralympic Team GB

Neave supporting Paralympic Team GB

Neave attends The Legacy Rainbow House for half day Conductive Therapy on Wednesdays which works her very hard to fulfil her potential.

Neave also goes to Zoe’s Place in Liverpool for a holiday two nights a month where she gets to go in the hydrotherapy pool and the sensory room.

Neave smiling

Neave smiling

Neave has had feed aversion and was tube fed for 6 months before having an operation to fit a “peg” at Alder Hey children’s hospital in January 2013.

Neave also has very irregular sleep patterns and does not sleep for more than a few hours at a time which is very tiring.

For the latest news and pictures of Neave you can follow her adventures on Twitter @Neavesfund and on Facebook by clicking on the links.

Thanks for your support.

One Responseso far.

Leave a Reply

Your email address will not be published. Required fields are marked *